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THE MACULAR
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Nara![]() Name: Nara Murphy Born: 10/10/71 Home: Fargo, North Dakota Diagnosis: Cone/Rod Dystrophy w/Pseudo RP Eyes Affected: Both Eye Color: Hazel Age at Diagnosis: 15 Visual Acuity: Legally Blind #8212; 20/400. Treatment: Glasses with prismatic bifocal and CPF 250 lenses. Prognosis or Current State of Vision: Stable, nothing can be done at this time. Family History: Sporadic — no one else in my family is inflicted with this. Impact on My Life: Have been able to adapt due to having progression be slow. Some days are better than others for dealing with this. Have learned to advocate more for myself. Positive Effects: Learn how to use new "toys", advocate for my self and others who are in the same boat. Adaptations: ZoomText Xtra, Mobility Training, CCTV -Aladdin 19" b/w, 19" computer monitor, writing guides and other personal innovations. Working: Still looking for work. Lots of interviews, but no bites. More About Me: I have a darling husband who sometimes is quite stressed on my condition. No children, due to risk for them being affected by this. Born and raised in Rugby, ND. I would like to be part of a study someday for C/R, but at this time, there are no studies available. I enjoy: cooking, crocheting rugs, reading murder mysteries, surfing the Net for ideas on everyday taks. |
MD
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