Mohammad Abdul Mannan
5th October 1973
Retinitis pigmentosa or Stargardt disease
Age at Diagnosis
First I was diagnosed with Retinitis Pigmentosa.
So I all doctors prescribed me to take a lot of vitamins & dietery supplements. But I was realizing little difference between other RP patients and me. So finally, in 2010, I asked a Retina Clinic in India to send my all test reports to ensure about my disease. But he reported me that mine is not RP, but Startgardt disease. So I studied on some website on Stargart disease and found a lot more similarities than with RP.
In my family history there were not any patient who had or has any disease like RP or SD.
Impact On Your Life
I am a creative peraon who always wants to learn more everyday. Also, want to do something for the technological development of my country. I have more interest in introducing with newer technology.
But day by day I am almost bounded to close all my dreams and reduce all of my activities that will help me to make my dream real. So I want to overcome the eye problem so I can use my life properly. I am also now working in my job only with my experience support. But I am sure that if the progression continues, then after one year I will have to leave my job. For that reason, I am ready to take any risk to get cure.
I am also ready to participate in any experimental treatment.
I do not feel any positive effects here in my country for this type of patient.
Electronics Engineer, also working as Chief Engineer in a large Group of Textile Industry
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