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Name
Maddy & Hailey Sanford-Barry
Born
17/11/2000 and 22/10/2001
Home
Australia
Diagnosis
Stargardt disease
Eyes Affected
Both
Eye Color
Maddy: Brown / Hailey: Blue
Age at Diagnosis
Both at 7 years
Acuity
Maddy: 20/120 R eye 20/200 L Eye. Hailey: 20/50 R eye 20/70 L eye
Treatment
Maddy only.
Prognosis
Maddy is still deteriorating. Unsure on what is going to happen. Hailey is stable.
Family History
No family History of Stargardt's Disease.
Impact On Your Life
Maddy: I find it hard to see, I really like to wear my glasses, even though it is still hard to see. It is just me, and I am used to it. Hate not being able to see what is happening in class if I am too far away. I used to love to play tennis but find it really hard. I still like to play netball. Watching TV is really hard now.
Hailey: I don't like seeing things kinda fuzzy. It is hard to read books sometimes.
Positive Effects
Both girls have never let it slow them down. They still try and do everything to the best of their ability, always with a smile.
Employment
Still in school
More About Me
From Mum: Both girls are full of life and have never shown any fear since they were diagnosed. Both are still doing really well in school and are always keen to give anything a go.
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