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THE MACULAR
DEGENERATION COMMUNITY

FIRST NAME


 

Name
Jillian

Born
6-18-81

Home
San Diego, California

Diagnosis
Stargardt's

Eyes Affected
Both

Eye Color
Blue

Age at Diagnosis
21

Visual Acuity
20/200

Treatment
None

Prognosis or Current State of Vision
Pretty much reach it's plateau.

Family History
My older brother has it. My younger sister doesn't yet, but she is having to wear glasses for the first time in her life. Mom took her to a doctor who said she didn't have it. However, she seems to be headed in that direction.

Impact on My Life
I was an avid reader, now I don't read as often. I loved to sit back and observe. That's obsolete. Lots of people think that I am exaggerating my condition, and many many people think me "Snotty" for not smiling back or waving to them.

Positive Effects
I don't have to be stuck behind some cash register, because it would be impossible for me to do. I know, because I once got fired from Del Taco after three hours on my first day.

Adaptations

I no longer drive, therefore I rely on foot or public transportation.

Working

Well, I'm in the process of attempting to collect disability. I am pursuing my real life's endeavor of being an author.



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