|
Name
James Cole
Born
10/05/1978
Home
England
Diagnosis
Stargardt Disease
Eyes Affected
Both
Eye Color
Brown
Age at Diagnosis
28
Acuity
Around 20/40
Treatment
None
Prognosis or Current State of
Vision
Not great
Family History
None in mothers side. Unsure of who father is.
Impact on My Life
I am no longer the person I was a year ago. I feel as though my friends can't cope with the realisation of what is happening. Therefore, I have withdrawn from them. I work with computers, which is now becoming really tough
Positive Effects
I have always been driven, and finding more people online to talk to is definitely a positive. I just feel sorry for the children who suffer with this condition. I can't begin to imagine what their parents are going through really.
Adaptations
I use lots of light around the house and different colour chopping boards, etc. in the kitchen.
Employment
I am a team leader for the software that I distribute and support.
More About Me
I was an avid sports player and watcher, but can't really do those things so much any more. So I guess my book has benefited greatly with new chapters and lots of time to put into it. I am less trusting of people than I used to be, which I think is a shame; but I don't like to risk my safety in the same way as I would have years ago.
|
