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THE MACULAR
DEGENERATION COMMUNITY

Adriann


 

Name
Adriann Ramsell-Keve

Born
May 27, 1982

Home
Waterloo, Iowa

Diagnosis
Stargardt's Disease

Eyes Affected
Both

Eye Color
Green

Age at Diagnosis
14

Visual Acuity
I believe my vision is at 20/200 now or somewhere close to that.

Treatment
None

Prognosis or Current State of Vision
Earlier, my doctor had told me that he thought that my vision should level off soon, but when I went back last year, he said it had gotten worse than he thought it would so who knows when it will stop deteriorating so quickly.

Family History
No one has had Stargardt's in my family before, so it's all new territory.

Impact on My Life
This has had a huge impact on my life. I don't have the confidence I need to go out and do things I used to do, I don't feel comfortable meeting new people, I don't feel like I can succeed at school, and am afraid to look for a new and better job. I feel very uncomfortable driving, and avoid it whenever possible, which results in a practically nonexistent social life.

Positive Effects
Not able to see any positive effects yet.

Adaptations

Working

I work full time in a dead end job because I am afraid to look for a better one for fear of not being able to do it.

More About Me

I was recently married to a wonderful man who would do anything for me. He takes me to work and other places when he can and goes to my doctor visits with me, which I am grateful for.



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