 | International Low Vision Support Group - Archives - |
| International Low Vision Support Group - Archives - |
This is where registered ILVSG affiliates may:
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| Brief Flash format presentations for low vision individuals or groups seeking to understand causes, symptoms and treatment of common eye conditions. |
| 3/9/06 | "The ABCs of Macular Degeneration" Introductory presentation by Dan Roberts, author: The First Year: Age-Related Macular Degeneration, founding director, ILVSG and MD Support. |
 Dan Roberts |
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| 4/13/06 | "Current Treatment and Research" Presentation by Dan Roberts with guest, Dr. Ed Huggett, O.D. Director, Low Vision and Binocular Vision Clinic, Morton Plant Mease Rehabilitation Center, Tampa Bay, FL Read the text | Newsletter |
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| 5/11/06 | "The T.A.S.K. of Living With Central Vision Loss" Presentation by Dan Roberts about the four elements of living successfully with low vision: Tenacity, Adaptability, Support and Knowledge. |
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| 6/8/06 | "Learning to Live with Low Vision: One Man's Journey Through Rehabilitation" A dramatic presentation featuring professional actor Richard C. Brown. |
 Richard C. Brown |
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| 9/14/06 | "Straight Talk About Cope-ability" A discussion with Mary Jay Clough, ACSW & Roy Cole, O.D., F.A.A.O. from the Jewish Guild for the Blind, New York City, NY |
 Dr. Roy Cole  Mary Jay Clough |
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| 10/12/06 | "Nutrition for Healthy Eyes" Presenter: Ellen Troyer, MT MA (Executive Vice President & Chief Research Officer, Biosyntrx, Inc.) |
 Ellen Troyer |
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| 11/9/06 | "With the Heart One Sees Rightly" Presenters: Lylas G. Mogk, M.D. and Prof. Marja Mogk, co-authors: Macular Degeneration:The Complete Guide to Saving and Maximizing Your Sight |
 Dr. Lylas Mogk |
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| 12/14/06 | "Living with Vision Loss - Hoping for Coping"
Presenter: Tom Perski, Motivational speaker and Director of Vision Services, Vision Care Ophthalmic Technologies, Inc., Saratoga, California. |
 Tom Perski | |
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1/11/07 | "A Quarter Century of Treating Wet AMD: The New Era" Presenter: Janet Sunness, M.D. Medical Director, Hoover Rehabilitation Services for Low Vision and Blindness, Greater Baltimore Medical Center, Baltimore, Maryland. |
 Janet Sunness |
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| 2/8/07 | "Focus on Lighting" Presenter: Charles Schwartz, M.S., Support Specialist, Low Vision Products. |
 Charles Schwartz |
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3/8/07 | "Issues With Low Vision" Presenter: Don Curran, AMD patient and President of the Board, Macular Degeneration Alliance International and representative of The Macular Disease Society (United Kingdom). |
 Don Curran |
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4/12/07 | "Sunlight and the Eyes" Presenter: Charles Schwartz, M.S., Support Specialist, Low Vision Products. |
Charles Schwartz |
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5/10/07 | "Update on Research and Treatments" Presenter: Dan Roberts, author: The First Year: Age-Related Macular Degeneration, founding director, ILVSG and MD Support. |
 Dan Roberts |
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6/14/07 | "A Conversation with Lorraine Marchi, L.H.D." Founding Director: National Association for Visually Handicapped |
 Lorraine Marchi |
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7/12/07 | "Alternative Medicine" Discussion of the pros and cons of therapies outside the medical mainstream, to include acupuncture, chelation therapy, RHEO procedure, homeopathy, microcurrent stimulation, ECHO therapy, biocurrent therapy and the Santa Fe Protocol. Presenters:
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| 8/9/07 "What is Low Vision Rehabilitation?" |
Presenter: Orli Weisser-Pike, OTR/L, CLVT, SCLV, Baptist Rehabilitation Germantown, Germantown, Tennessee.  Orli Weisser-Pike, O.T.
| 9/13/07 "Who Are Those People in the White Coats?" | Understanding your doctor and knowing what questions to ask. Presenters:
| 10/11/07 "Successful Self-Management" How you can manage your own continuum of care and be an effective partner in your treatment and rehabilitation. Presenter: Lynne Noon, O.D., FAAO, Diplomate in Low Vision Rehabilitation; President, LowVision.com.  Lynne Noon, O.D.
| 11/8/07 "Eye Didn't Know That!" A tour through the eye and fun facts about how it works, leading to a greater appreciation for the process of sight. Presenter: Edward J. Huggett, O.D., Chief of Low Vision Services, St. Luke's Cataract and Laser Institute, Tarpon Springs, Florida.  Edward J. Huggett, Jr., O.D.
| 12/13/07 "Holiday Food Fun & Eye Health" Update on nutrition for healthy eyes, plus tasty and healthy recipes for the holidays or any time of the year. Presenter: Ellen Troyer, MT MA (Executive Vice President & Chief Research Officer, Biosyntrx, Inc.) Ellen Troyer | ||||||||||||||||
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Jan 10 | "The Challenges of Multiple Age-Related Disabilities" Presenter: Mary Warren, MS, OTR/L, SCLV, FAOTA (Department of Occupational Therapy, University of Alabama at Birmingham) |
 Mary Warren | ||
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Feb 14 | "Senior EZ Livin': Tips and Tricks for Making Life Easier" Presenter: Charles Schwartz, MS, Support Specialist, Low Vision Products |
Charles Schwartz | ||
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Mar 13 | "Aging Successfully with Vision Loss: Creative Pursuits and Leisure Activities" Presenters: Colleen O'Donnell, MSA, OTR, CLVT and Mary Ellen Daniel, MSA, OTR, CLVT (Visual Rehabilitation and Research Center, Henry Ford Health System) |
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Apr 10 | "Overview of Assistive Technology for the Blind and Visually Impaired" Presenter: Ike Presley, American Foundation for the Blind |
 Ike Presley | ||
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May 8 | "Maintaining Your Quality of Life" Presenter: Michael Epp, Envision Rehabilitation Center |
 Michael Epp | ||
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Jun 12 | "Preventing Type 2 Diabetes" Presenter: Susan Mills-Gray (University of Missouri, MU Extension) |
 Susan Mills-Gray | ||
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Jul 10 | "Travel Without Trouble (In Spite of Low Vision)" Presenter: Dan Roberts, Director, MD Support |
Dan Roberts | ||
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Aug 14 | "Hearing and Vision Loss" Presenter: Helen J. Simon, Ph.D. (Smith-Kettlewell Eye Research Institute) |
 Helen Simon, Ph.D. | ||
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Sep 11 | "What You See Is What You Eat" Presenter: Lylas Mogk, M.D. (Henry Ford Medical Center, Lavonia MI) |
Lylas Mogk, M.D. | ||
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Oct 9 | "Who Am I and What Am I Doing Here?" A chat with Dan Roberts (Director, MD Support) about the patient's role in the continuum of care. Moderated by Edward J. Huggett, O.D. |
Dan Roberts | ||
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Nov 13 | "Adventures in Darkness" Presenter: Tom Sullivan (actor, singer, entertainer, author, producer) |
 Tom Sullivan | ||
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Nov 13 | "Cooking Without Looking" Presenter: Renee Rentmeester (VisionWorld Foundation) |
 Renee Rentmeester | ||
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Jan 8 | "Reclaiming Independence: Staying in the Driver's Seat When You No Longer Drive" Presenter: L. Penny Rosenblum, Ph.D. (University of Arizona) |
 Dr. Rosenblum | |
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Feb 12 | "Body Weight and Eye Disease" Presenter: Ellen Troyer, M.T., M.A. (Chief Research Officer, Biosyntrx, Inc.) |
Ellen Troyer | |
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Mar 12 | "Learning Nonvisual Skills--Part One: Using a Cane" Presenter: Robert W. Massof, Ph.D. (Johns Hopkins University School of Medicine |
 Robert Massof | |
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Apr. 9 | "Current Thinking in the Prevention of AMD." Presenter: Dan Roberts (Director, MD Support) |
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May 14 | "Crashing Through--Making the Most of Life in the Face of Adversity" Presenter: Michael May (President & CEO, Sendero Group, LLC) |
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June 11 | "The Latest in Research and Treatment" Presenter: Dan Roberts (Director, MD Support) |
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July 9 | "Memory as a Substitute for Vision: The Aging Brain" Presenter: Colleen O'Donnell, MSA, OTR, CLVT (Visual Rehabilitation and Research Center, Henry Ford Health System) |
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Aug 13 | "You Don't Need a Computer to See--Video and Adaptive Technology for the Low Vision Patient" Presenter: Michael Fischer, O.D., F.A.A.O. (Low Vision Clinical Consultant, Lighthouse International, NYC) |
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Sep 12 | "Celebrating Successes During AMD Week 2009" (A panel discussion of successes in advocacy, research and low vision rehabilitation) Guest speakers: Bruce Rosenthal, OD, FAAO Chief of the Low Vision Clinical Practice, Lighthouse International, New York City Gerald Chader, Ph.D. Chief Scientific Officer, Doheny Retina Institute, USC Medical School, Los Angeles, CA David Herman Board Chairman, AMDAI |
 Bruce Rosenthal  Gerald Chader  David Herman | |
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Oct 8 | "A Look at the Future: Low Vision Rehabilitation" Presenter: Gislin Dagnelie, Ph.D. (Lions Vision Research and Rehabilitation Center, Wilmer Eye Institute, Johns Hopkins University) |
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Nov 12 | "Nutrition: Separating Fact From Fiction" Presenter: Ellen Troyer, M.T., M.A. (CEO, Biosyntrx, Inc.) |
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Dec 8 | "A Look at the Future: AMD Research and Treatment" Presenter: Gerald Chader, Ph.D. (Chief Scientific Officer, Doheny Retina Institute, USC Medical School, Los Angeles, CA) |
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Jan 14 | "The Latest in Low Vision Rehabilitation" Presenter: Bruce Rosenthal, O.D. (Lighthouse International, New York City NY) |
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Feb 11 | "Understanding Genetics" Presenter: Stuart Richer, O.D., Ph.D. (U.S. Department of Veterans Affairs, North Chicago IL) |
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Mar 11 | "Research and Treatment for Dry AMD" Presenter: Janet Sunness, M.D. (Greater Baltimore Medical Center) |
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Apr 8 | "Navigating Everyday Tasks With Less Stress" Presenter: Anita Arakawa, M.A. (Veterans Administration, Los Angeles CA) |
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May 13 | "Understanding Stem Cells" Presenter: Dan Roberts (Founding Director, MD Support) with Professors Claudio Stern and Pete Coffey (University College London) |
 Claudio Stern  Pete Coffey | |
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Jun 10 | "Summary of Treatments and Research 2010" Presenter: Dan Roberts (Founding Director, MD Support) |
Dan Roberts | |
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Jul 8 | "Facing Technophobia" Presenter: Dorrie Rush (Lighthouse International) |
 Dorrie Rush | |
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Aug 12 | "What You Should Know About Glaucoma" Presenter: Ed Huggett, O.D. (Huggett Vision Institute, Holiday FL) with David Mittelstein (Vision for Vision, Laguna Niguel, CA) |
 Edward J. Huggett | |
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Sept 9 | "Radiation Therapy for Macular Degeneration" Presenter: Peter Sonkin (Tennessee Retina, Nashville TN) |
 Peter Sonkin | |
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Oct 14 | "Diabetes and Vision Loss" Presenters: Roy Cole, OD, and Karen McCauley, RN, BSN, CDE (The Jewish Guild, New York City, NY) |
Dr. Roy Cole  Karen McCauley | |
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Nov 11 | "Seeing Lessons" Presenter: Tom Sullivan (Blind Entertainer, Author, Actor and Athlete) |
Tom Sullivan | |
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Dec 9 | "Super Foods for 2011" Presenter: Ellen Troyer, MT, MA (CEO, Biosyntrx, Inc.) |
Ellen Troyer | |
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Jan 13 | "Head, Heart, and Eyes" Presenter: R. Tracy Williams, OD, FAAO, with Leah Gerlach, M.S., C.R.C. (Spectrios Institute for Low Vision, Wheaton, IL) |
 Tracy Williams | |
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Feb 10 | "Crossing the Line From Visual to Nonvisual Skills" Presenter: Maurice Peret (Blind Industries & Services of Maryland) |
 Maurice Peret | |
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Mar 10 | "Going Blind" Preview of the Joseph Lovett film (Lovett Productions, Inc., New York NY) |
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April 14 | "Emotion and Adjustment" Presenter: Julia Kleinschmidt, PhD (Director, Patient Support Program, Moran Eye Center, Utah |
 Julia Kleinschmidt | |
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May 12 | "Spirituality Can Help" Presenter: Colleen O'Donnell, MSA, OTR, CLVT (Visual Rehabilitation and Research Center, Henry Ford Health System, Detroit MI) |
Colleen O'Donnell | |
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June 9 | "Summary of Treatment & Research--2011" Presenter: Dan Roberts (Director, MD Support) |
Dan Roberts | |
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July 14 | ""What's Your Story?" Featuring the portraits of Adam Hahn. Interviews with low vision individuals provided by AMD Alliance International. Moderated by Dan Roberts. |
 Adam Hahn | |
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Aug 11 | "Keeping Fit: Fall Prevention and Exercise for Older Adults with Vision Loss" Presenter: Anne Riddering, OTR/L, CLVT, COMS (Henry Ford Health System, Detroit MI) |
 Anne Riddering | |
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Sept 8 | "Smart Medicine For Your Eyes" Presenter: Jeffrey Anshel, OD, FAAO (President, Ocular Nutrition Society) |
 Jeffrey Anshel | |
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Oct 13 | "Hallucinations and Low Vision--Understanding Charles Bonnet Syndrome" Presenters: Liz Trauernicht (Director, Macular Degeneration Foundation) with Oliver Sacks, M.D. and Marjorie Louer |
 Liz Trauernicht | |
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Nov 11 | "New Technology for People With Low Vision" Presenter: Ike Presley (American Foundation for the Blind) |
Ike Presley | |
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Dec 8 | "Holiday Nutrition Magic" Presenter: Ellen Troyer, M.T., M.A. (CEO, Biosyntrx, Inc.) with Sandra Young, O.D. |
Ellen Troyer | |
| January | "Looking Past Limits" Motivational speech by low vision activist Caroline Casey (Founding CEO, Aisling Foundation), originally produced by TED Talks. |
| February | "Self-Monitoring Your Vision" Discussion of the importance of self-monitoring between exams, including descriptions of home tests available. Guest presenter: Mark Roser (KeepSight Testing & Monitoring Solutions) |
| March | "Helping Others Understand" Suggestions of ways to increase understanding of visual impairment by family members, friends, and care givers. Free companion booklet, "Caring for the Visually Impaired", available here. |
| April | "Gardening With Low Vision" A Hadley School for the Blind past seminar, originally titled "Harvest the Benefits of Gardening". Information about garden planning, choosing and identifying plants, appropriate tools and hardware, and adaptive techniques. |
| May | "What Do You Know About Your Eyes?" The first in a series of three fun and educational quiz games hosted by Ed Huggett, O.D. and ILVSG Director Dan Roberts. |
| June | "Summary of Research 2012" A wrap up of all news-making eye-related research and developments during the past 12 months. |
| July | "How Much Do You Know About Health and Nutrition?" The second in a series of three fun and educational quiz games hosted by Ed Huggett, O.D. and ILVSG Director Dan Roberts. |
| August | "How Much Do You Know About Doc Talk?" The third in a series of three fun and educational quiz games hosted by Ed Huggett, O.D. and ILVSG Director Dan Roberts. |
| September | "What's So Funny About Low Vision?" 20 minutes of humorous jokes and anecdotes about life with visual impairment, as contributed by members of the low vision community and told by MD Support Director Dan Roberts. Audio only. |
| October | "Can Low Vision Rehabilitation Help?" Low vision specialist Leslie Burkhardt, MSLVT discusses how Low Vision Rehabilitation educates people about vision loss, and how it helps them to assess, regain and re-prioritize function that has been limited by vision loss. |
| November | "Limited Vision...Unlimited Potential" Tracy Williams, O.D., F.A.A.O. and Gregg Pusateri, O.D., M.Div. (Spectrios Institute, Wheaton IL) answer questions posed by ILVSG Director Dan Roberts about the importance of low vision rehabilitation to a person's psychological and spiritual well-being. |
| December | "Aging, Inflammation and Antioxidants" Ellen Troyer, M.T., M.A. (CEO, Biosyntrx, Inc.) discusses new research about how the aging process can be slowed in seniors through diet and nutrition. |
| January | "Suffering, Endurance, Character, and Hope"
This inspiring speech was delivered by Paul Karos at the opening session of Visions 2012, sponsored by the Foundation Fighting Blindness. Mr. Karos, who was diagnosed at the age of eight with retinitis pigmentosa, describes how vision loss affected his life as he traveled the road from desperation as a young man to becoming one of the top executives in the country. |
| February | "Participating in a Clinical Trial" This is the second in our series of presentations selected from the Visions 2012 conference, sponsored by the Foundation Fighting Blindness. Dr. David Birch covers the many aspects of a clinical trial a patient should know before participating in one. Topics will include inclusion and exclusion criteria, what to expect during study visits, open-label versus placebo controlled studies, and why clinical trials are important. The second part presents Drs. David Wilson, Matthew Vincent, and David Saperstein, who describe three major clinical trials now underway. |
| March | "Growing Through Grief: Emotional Adjustment to Vision Loss" This third session in the Visions 2012 series presents Ellen Morrow, who reviews the feelings and reactions to grieving the loss of vision. She describes different types of loss and different methods of coping, including inner strength and outer resources. She also discusses newer research on significant factors in resiliency. |
| April | "Overcoming the 'Obstacle' of Blindness"
The fourth Visions 2012 entry presents Eric Weihenmayer, the only blind man to climb all seven summits, offering an impactful message about harnessing the power of adversity and using it as fuel for greatness. Viewing adversity not as the enemy, but as the pathway. He emphasizes the importance of teamwork and talks about the daily struggle to pursue dreams. |
| May | "Crime Prevention and Personal Safety for the Blind and Visually Impaired" Our final selection from the Visions 2012 conference introduces Bobbi Moore, who provides tips for the visually impaired to increase confidence and the ability to handle themselves in a dangerous situation. |
| June | "Summary of Research and Developments 2013" MD Support Director Dan Roberts presents his annual report on pertinent low vision research and developments during the past 12 months. |
| July | "Understanding Drug Side Effects and Adverse Events" MD Support Director Dan Roberts explains what patients should and should not be concerned about when undergoing drug treatment. |
| August | "ADA Complementary Paratransit Basics" Information from Easter Seals Project Action about alternative transportation for the visually impaired. Presenter: Kristi McLaughlin. Training and Technical Assistance Specialist. |
| September | "Where Did I Put It?" Polly Abbott, Certified Vision Rehabilitation Therapist at Second Sense, shares strategies and tips for organizing and identifying belongings. Polly provides further information on how to create independence through a system of organization. |
| October | "Is the iPhone/iPad Right for Low Vision Seniors?" Hadley School for the Blind instructor Amy Salmon explains the many benefits an easy-to-use iDevice can offer to our low vision community. This condensed audio/visual version of a Hadley School for the Blind seminar is available only to ILVSG affiliates. The original full-length audio presentation may be heard here. |
| November | "Aging and Low Vision" Bryan Gerritsen, CLVT, discusses how we are confronted daily with different visual challenges, and how we can handle them. This condensed audio/visual version of a Hadley School for the Blind seminar is available only to ILVSG affiliates. The original full-length audio presentation may be heard here. |
| December | "What's New in Nutrition?" Ellen Troyer, M.T., M.A. (Chief Research Officer, Biosyntrx, Inc.) returns to update us on the past year's developments in nutrition science. Her talk includes a clarification of the AREDS2 results. |
